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And when you unlock the gate on scleroderma, it will impact a lot of other conditions. We have some of the greatest minds in science working on this. You cannot eradicate the disease or diminish the disease without understanding it. Research is the key that opens the door for the cure. There is no improved treatment and there is no cure without the research. Why is research like that supported by NIH so important?
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But I would tell loved ones: Don't give up hope. My family is still having post-traumatic stress disorder. It is incredibly painful to have a loved one experience a condition like this. And if they can, try to get help from a center of excellence to get the best treatment. I also advise them to get educated about the condition and to find a real expert in scleroderma to care for them. My word to them is don't give up hope because we are making incredible progress. I speak with and meet a lot of people with the condition. What message do you have for those living with the condition and their loved ones? But we have a long way to go to get to even more effective treatments and eventually a cure. There are new drugs specifically for scleroderma that are helping people. The good news is that since then we have made some remarkable progress. She had to move to Los Angeles to live with my parents because she needed so much help. She got treatment, but it was just treating her symptoms with drugs like prednisone and cortisone.
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She was 44 when she was diagnosed with systemic scleroderma. My sister, Gay Saget, was a school teacher near Philadelphia. Your sister fought a long battle with scleroderma. I have been on the board of directors of the SRF for over a decade now and hosted their events for 25 years. Little did I know that just a few years later, my sister would be diagnosed with the disease. I said yes and hosted the event, which starred Ellen DeGeneres, Rosie O'Donnell, and others. The call was from Sharon Monskey, a wonderful and amazing woman, a former ice skater who had scleroderma and founded the Scleroderma Research Foundation (SRF). One day I got a call from someone I did not know asking me to host a comedy fundraiser for a disease I knew very little about. How did you first get involved as an advocate for those with scleroderma? He recently spoke with NIH MedlinePlus magazine about his advocacy and commitment to finding a cure for the disease. The "Full House," "America's Funniest Home Videos," and "Fuller House" star has also won praise for his longtime advocacy on behalf of people battling scleroderma, a chronic autoimmune disease. Television actor and comedian Bob Saget has been making Americans laugh for decades.